Sunday, May 20, 2012

Knowledge is Indeed Precious


Last week, PBS aired a film entitled Precious Knowledge.  This film highlighted a program in ethnic studies in the Tucson, AZ high schools which focused on Latino students and their rich histories.  The curriculum program was born out the need to support students with historically high drop-out rates who have been failed by standard educational programming. 

The film features bright, articulate students who talk about a sense of finding their identity.  The students were empowered to believe that they could shape their own destiny rather than being controlled by stereotypes and limitations.

 Unfortunately, the story took a bitter turn when the classes were swept up into the politics of a state that appears to be bent on controlling populations of people through scare tactics and legislation.  In 2011, the Arizona lawmakers passed legislation that effectively abolished the ethnic studies classes.   The more faculty and students tried to express their voices, the more there were labeled as radicals who were intent on overthrowing the government.

This poignant story underscores the importance of examining public institutions and policies that try to control parts of the population for their own good.  It is imperative that we look closely at our own lens and think about how our individual reactions shape the experiences of all of the individuals we work with whether they are students, clients or co-workers.  Are we creating a place for people find their voice or are we part of the efforts to control?

One of the courses that I regularly teach is an introduction to special education course.  Students who enroll in the course plan to become teachers in special education, elementary education, early childhood education or related human service fields.  At the end of the course, I challenge students by encouraging them to think about how they can become advocates for persons with disabilities.  I explain how advocacy can range from monitoring our own language and using language that is culturally and contextually sensitive, to learning more about different groups through active inquiry, to volunteering our time to serve others, to speaking up on the behalf of others. 

Watching Precious Knowledge brought the message of advocacy right home.  We can all be advocates.  We can all take a stand through our behaviors, beliefs and attitudes.  Most importantly, we can open our minds to knowledge from the world around us which can be truly precious. 

 Precious Knowledge. PBS Video. Retrieve from http://www.pbs.org/independentlens/precious-knowledge/

Saturday, May 12, 2012

The Autism Community: Coming Together for Change

According to the Centers for Disease Control and Prevention, approximately 1 in 88 children will be diagnosed with an autism spectrum disorder.  The increased incidence of autism and related disorders is astounding.  When I started working as a music therapist in the early 90s, the prevalence figures were much less.  There were fewer supports for individuals with autism and their families.  More families had a sense of isolation.

With the increase of the incidence of autism, there is also an increase in the number of individuals and families impacted by this lifelong disability.  Early this morning, I volunteered for the Autism Speaks walk in Chicago.  Hundreds of volunteers, numerous organizations, and thousands of individuals with autism and their families and friends all convened at Soldier Field in Chicago to respond to the need to bring attention and dollars to this very important cause. 

As with many charity walks, people form teams.  The teams make t-shirts and carry signs in support of their friend of family member with autism.  Some of the teams were 50+ members strong.  It was wonderful seeing so many people rally around individuals and their families.  Families that many years ago would likely have felt very much alone are now surrounded with their friends and family.  Families are now surrounded by organizations and a promise for resources that will lead to on-going research and support.

There has been a dramatic change in the autism community over the years that is representative of the larger changes in disability culture.  There is a tone of empowerment and a demand for continued change.  The people that will see the benefit of this cultural shift are the many individuals with autism spectrum disorders.

Autism Speaks.  www.autismspeaks.org

New Data on Autism Spectrum Disorders. (March 29, 2012).  Centers for Disease Control and Prevention.  Retrieved from http://www.cdc.gov/Features/CountingAutism/